“This is my personal journey of surviving a life threatening illness. Millions of children around the world suffer from leukemia. I am not alone in this fight.” Lara Berkmen, is a 13 year old girl who lives in Fairfield, CT and was diagnosed with an aggressive form of AML (Acute Myelogenous Leukemia), in September, 2012. After 4 rounds of chemotherapy, doctors decided that she needs a bone marrow transplant in order to get rid of the leukemic cells in her body. She loves reading, writing, swimming, playing instruments, and is being recognized for her efforts and natural talents.
Family, friends and our community are working together to help Lara and other patients in need. Together with The Icla da Silva Foundation, they have created a bone marrow drive event to reach out to the friends and community, to educate them about Bone Marrow Donation. Even though she was born in the US, due to her parent's back ground (Turkish), Lara’s family...
SARASOTA, Fla. - Nancy Newby, a McNeal elementary school teacher in Manatee County needs help finding a bone marrow match.
Newby is battling Multiple Myeloma, a form of blood cancer and needs a bone marrow transplant, but no one in her family is a match. With help from the Icla da Silva Foundation, McNeal hopes to find her match.
A bone marrow drive will be held on Saturday, Jan. 26 from 4:30 to 7:30 p.m. and Sunday, Jan. 27 from 10:30 a.m. to 2:30 p.m. at Saint Jude Catholic Church, 3930 17th St., Sarasota.
If you would like to participate all you have to do is show up and a cheek swab will be taken to test for compatibility.
For more information, contact Ileana Quinones with the Icla da Silva Foundation at 904-705-1593, or visit bethematch.org
To help increase the number and diversity of people in the National Marrow Donor Program’s bone marrow registry, the North Shore-LIJHealth System hosted a drive on December 7 at Cohen Children’s Medical Center (CCMC) for people to sign up for the registry.
Though 16-year-old Carly Nieves did not need a bone marrow transplant, her treatment course could have required one. This led Carly and her mother, Lisa Horner, to become bone marrow registry advocates. Carly was diagnosed with Pre-B Cell Acute Lymphoblastic Leukemia in 2003 and, despite completing two and a half years of chemotherapy, suffered a relapse in 2008. At that time, her option was to either receive another long course of chemotherapy or to undergo a bone marrow transplant; Carly opted for the chemotherapy.
“She was a lot luckier than some to have had the choice between having chemotherapy and a bone marrow transplant,” Horner said.
Ms. Horner is on the bone marrow registry and regularly encourages others to sign up, which involves having...
Cancer has wrapped itself around the branches of Dayana Pacherres’ family tree like a honeysuckle vine strangling a towering oak.
At least nine people in her family have died from the same disease – acute myeloid leukemia, or AML, a fast-moving blood cancer not usually considered hereditary.
Dayana’s big brown eyes and solemn face are a reminder of that loss. She wasn’t even 2 years old when her mother, Karina, died. She never had the chance to know two older brothers who also passed away from AML, which starts in the marrow, the soft tissue inside bones that helps form blood cells.
“My daughter was her mother, but she calls me ‘Mom,’” Dayana’s grandmother, Flor Rizo-Castillo said, speaking through a medical interpreter. “I don’t think she remembers her living. She left her when she was very little.”
But growing up without her mother isn’t the biggest challenge Dayana has faced in her young life. Earlier this year, Dayana began having trouble staying healthy. She...
NEW YORK (September 17, 2012) – Celebrating 20 years of conducting campaigns to recruit bone marrow registrants, as well as the emotional meeting of a leukemia patient and her bone marrow donor, the Icla da Silva Foundation will honor Christine Quinn, Speaker of the New York City Council, at a fundraising gala on Wednesday, October 3, 2012 at Gotham Hall (pictured on the left).More than 300 people will gather to mark the success of the Foundation's recruitment efforts, which annually register more than 40,000 potential donors. People with sickle cell disease and severe aplastic anemia, as well as leukemia, require bone marrow transplant. For the 70% of patients who do not find an appropriate match among family members, their only hope for a donor is through the matching process conducted by the Be The Match Registry, operated by the National Marrow Donor Program.“The Icla da Silva Foundation has an aggressive goal to raise funds and resources, especially to aid the families who struggle...